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Join Ruby as she goes about her typical day at school. She shares both an Instagram and YouTube channel with her mother called Angie and Ruby. Before Fame. She developed a rare genetic condition called Stromme Syndrome. Trivia. Her mother used the support they found on Instagram to raise $15,000 on GoFundMe in under a week for a future support dog. Family Life Ruby is a 12-year old with an extremely rare genetic condition called Stromme Syndrome, which causes microcephaly, vision impairment, bowel obstruction, short stature and developmental delays.
Before Fame. She developed a rare genetic condition called Stromme Syndrome. Trivia. Her mother used the support they found on Instagram to raise $15,000 on GoFundMe in under a week for a future support dog.
Ruby is a 12-year old with an extremely rare genetic condition called Stromme Syndrome, which causes microcephaly, vision impairment, bowel obstruction, short stature and developmental delays.
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Her condition causes a vision impairment, microcephaly May 18, 2017 Ruby is a 12-year old with an extremely rare genetic condition called Stromme Syndrome, which causes microcephaly, vision impairment, @AngieandRuby. Ruby is 14 and has a rare genetic condition called Stromme Syndrome. Angie is her momma and cheerleader. Most active on Instagram @ In this video, CEO Chris Ulmer interviews 12-year-old Ruby Ardolf, one of fewer than 50 people in the world with a genetic condition called Stromme Syndrome.
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Her father did not second his spouse Angie’s decision not to terminate the pregnancy medically. Angie and Ruby. 36K likes. Ruby is a 15-year-old with a rare genetic condition called Stromme Syndrome. Angie is her momma and fearless advocate. Angie and Ruby 💎 Ruby is 16 and has Stromme Syndrome 👩👧 Angie is her momma 🦮 @charliehelpsruby is her service dog ♥️ Our motto: Ruby is 1 of 12 known cases of Stromme syndrome in the world.
In today's video, I spend some time answering the most frequently asked questions I receive about Strømme Syndrome and Ruby. Also, I talk about how we decide
Stromme Syndrome is named after Peter Stromme, a Norwegian pediatrician who first discovered the abnormalities back in 1993. The name did not get coined until 2007 when another professional discovered another case of it. In 2015, it was identified that harmful changes in the gene CENPF are the cause of Stromme Syndrome. Angie and Ruby are a mother-daughter team on a mission to make the world a more inclusive, accepting and loving place.
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Definition. Stromme syndrome is a genetic disorder. The majority of patients with Stromme syndrome will have microcephaly. This is a condition where the circumference of the patients head is considerably smaller than usual.
Ruby’s beginnings were pretty rough, who happened to be an unplanned pregnancy. Her father did not second his spouse Angie’s decision not to terminate the pregnancy medically. Angie and Ruby. 36K likes.
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Angie and Ruby 💎 Ruby is 16 and has Stromme Syndrome 👩👧 Angie is her momma 🦮 @charliehelpsruby is her service dog ♥️ Our motto: Ruby is 1 of 12 known cases of Stromme syndrome in the world. She is also part of a community that loves and accepts her fully. Join Ruby as she goes about her typical day at school. 110K110K Ruby is 1 of 12 people in the world known to have Stromme syndrome and is blind.
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Join her as she goes about a typical day at school. SBSK Patreon: https://www.patreon.com/SBSKS Meet Ruby!